family · Lifestyle · respect yourself · sanity · Uncategorized

Feeding Your Heart and Soul

A steady diet of feeding your heart and soul is just as imperative as feeding your body. Perhaps more so . Anyone who knows me , knows that I have a voracious appetite and I often wonder why .

I don’t think my children realize the extent to which they fed my heart and soul. I could not have loved them. Perhaps I could have loved them better but I was a working mother of three ..sometimes holding down two jobs ..working seven days a week and still trying to fit in motivation , education and time together. It was not easy . My (former ) daughter asked me years ago how I did it and I honestly replied “I don’t know, I just did ” because I wanted the best for them and they are all successful in their own rights . I wanted them to have the lives and opportunities that passed me by and I made that my mission as a mother .

They are all off and on their own ..in July 2009 a baby girl was born with the ear of a fairy , and I was called upon to take care of her for lengths of time , which I never minded , because I adore children, but I adored her most of all because the love was reciprocated . For seven years that child fed my heart and soul and was EVERYTHING to me . She has siblings but I don’t really know them and they don’t know me.

As many may be aware , I have extremely severe medical conditions, the least of which is spinal cord injuries since 2008 , over and over . I spent 11 years in physical therapy ( I just returned after a break) I am a fighter . My Diagnosis in 2006 was eventual quadriplegia ..I also have two bleeding disorders, one of which I found out recently was a  form of hemophilia. That might explain those multiple experiences of hemorrhagic episode and , yet< I was trying to be such a devoted mother that I recall making cupcakes for Valentine’s Day for my daughter’s class….one of my sons on my hips and clenching my legs together due to hemorrhage. There is not much I would not do for them (I draw the line at illegal ..why I left my long time high paying job) .

I have been seeing the same neurologist for almost 12 years ..every 2-3 months since 2006 to monitor my strength and progress , or lack there of . He is one of the top Neurologist’s at a top Hospital in the USA  but his hands are tied . NO epidural injections ..no surgery ..no EMG’s with direct needle sticks into my neck or spine.  I know that he has seen the light dim from my eyes over the years . As he stated to me in May of this year ” So many injuries (accidental , of course ) ..so much extensive damage” . I have fought a long battle with this ..there are days that I am at the gym and I feel like giving up, but I push myself  although my inspiration is gone .

I fought to be there for my fairy princess , and comrade in fun but she is out of reach  and LOL my children never really did speak to my DR ..and he tried to reach one of them …I was injured, more severely three years ago and I have never recovered . In fact , I have had further injuries ,. June 4th of this year ..seems to have affected C1-2 . To state that I am not frightened would be a lie because that is pretty much death

I attempted suicide a year and  a half ago ..February 13, 2017 ..why (?) many may ask  Because I was number 1 in my both my pre-med and US classes ..and had 30 years experience working in the medical field . Because I know how severe my spinal condition is ..as some one who has worked out for 40+ years , I know my body ….I know it was done and that was before two injuries ( not my doing) on April 29 and June 4, 2018 , which made me leery of getting in a car with any other driver..and I am limited . That incident on June 4th seems to have affected the use of my right arm..dominant arm and my left side is severely nerve damaged . However, again , I digress ..Once upon a time my  (former )  daughter said ” I thought your Drs all hated you” To which I responded ” Where did you ever get that impression?”  When I attempted suicide ( i really think the vodka messed me up as I was never a drinker …empty calories ) the Head of Cardiology at our local Hospital ( which is also not rated as shabby) stayed by my side the entire time that I was in the Emergency Room  ( he later told me you knew what the hell you were doing) ..My Dr’s actually hold a great respect for me and what I have been through and endured . Physical condition and strong mind have been credited to my survival , and that is years in the running .

I do not believe that my children will ever truly know what I have endured , and how hard I fought ..because I loved one little girl so much  I would die for her , as I would have died for them ..She was taken from me and no one realizes how severely disabled I am ( at least  not my family ) Drs have made attempts to reach out for years to little avail

if you really knew me , I may be one of the most loving selfless people you may ever know ..but I am uber tolerant and gullible and easily discarded ..it appears ..and all the while I begged ..Hurt me ..I know a lifetime of it ..but please do not hurt a child …ignored ..my granddaughter is better off believing that I am dead , rather than the fact that I may have abandoned, or no longer love her?

When you lose the capacity to enjoy any hobbies..when you are in pain 24/7 for years..when you sleep deprived due to that you do begin to give up . Music can feed my soul but that is off limits as well, unless I am driving ..the few that I can . Without heart and should food you will wither away

 

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